I'm missing writing on ByJane. I'm missing doodling with keyboard and I'm missing venting and I'm missing sharing my every this, that or the other. MidLifeBloggers seems too--I dunno--grownup to just mess about on. Or maybe it's just me. Maybe I feel too grownup to mess about in public. Whatever. Stuff is going on in my life and ByJane is where I've always put my stuff. Will I post it on MidLifeBloggers as well? I dunno.
Today D comes back to my house for a while. Take note of the pronoun, people, because it is My house. It may be the address listed on his license, but he doesn't live here anymore. He hasn't for over a year now. But in that year, something interesting has happened. The family I worked so hard for--my two step-sons, my daughters-in-law, my granddaughter--that family has coalesced and solidified and...any other words you could think of for "becoming tight." It happened willnilly of D; it began, in fact, without him. But now he's in there too and we're all, all of us, happy to see each other and be together as a family.
And happy to count on each other, as one does with family. Therein lies the why of D coming back to my house for a while. A couple of weeks ago, he got the dreaded news, the one that begins with C and ends with surgery. I'm not even counting chemo and radiation in there because we're hoping it ends with surgery. D lives alone, over an hour away from all of us. He'll need to be taken care of, at the very least. At the most, which is the way I do things, he needs a loving friend to go through this with him. He did it for me when I had the cerebral aneurysm. Now I'll do it for him.
I'm shy about telling people this because it's hard to explain in this world of I hate you and never darken my door again marital splits. But the fact is that I can't not do it. I guess I really did take those vows seriously: in sickness and in health....
Showing posts with label illness. Show all posts
Showing posts with label illness. Show all posts
Saturday, June 06, 2009
Wednesday, August 27, 2008
Death and Dying - at Midlife
I was out of sorts yesterday. Just felt meh-ish, after a several week period in which I was up-and-at-em. Am I crashing, I thought. Oh no, oh woe. But then I did what I have learned to do at such times (at least when I can remember) and that is to just accept that I'm feeling meh-ish. And know that it too will pass. While I was working at achieving this pseudo-Zen state--and wishing, really, that I could have a Stepford button installed in my brain because who needs to feel meh-ish even if you know it will pass--I realized the source of my state of mind. The day before my friend M called to tell me that our friend Sharon was dying.
I saw Sharon when I was in LA a couple of weeks ago. It was a reunion of sorts of our book club and Sharon, who hadn't been feeling at all well, particularly wanted to come. She needed to see her friends. The group of us hung out as we have done so many times in the past, and we talked, really talked, 'checking in' with each other as only women who have history together can do. My check-in was to relate not only the ghastly year I've had, but also the much more promising one that seems now to be taking place.
Sharon checked in with her medical report. The doctor saw a spot on her lung and said it was probably sarcoidosis. Or maybe lung cancer. Sharon wasn't buying that diagnosis; she much preferred the sarcoidosis, which is an immune system disease that is rarely fatal. She would do what she has always done (sometimes with disasterous results, it must be said) and trust totally in Alternative non-Western medicine. She was refusing the steroids that would be prescribed for the sarcoidosis and she was refusing the second CAT scan that would rule out cancer. But oh, she was so tired, and so weak, and so very very depressed. The doctor wanted her to go on anti-depressants and until now, she had refused them as well. But we, her girl friends (some of whom were loaded up on Prozac and Effexor themselves) urged her to reconsider. Think of the mind-body connection, Sharon, we told her. How can you hope to get well without your full emotional strength. And she finally agreed. When I hugged her goodbye, it was with the knowledge that she too would soon be loaded up on Effexor and feeling 100% in just a matter of time.
I don't think she ever got that prescription filled. The next day I'm told she was so weak that her sister came to take her to the doctor. She had the second CAT scan. Stage IV lung cancer; metastasized already to her bones. She died yesterday, just three weeks after I last saw her. When M called to tell me, I thought, Aha--the meh-ish feeling made much more sense than I had originally thought.
I've reached the age when I'm starting to lose my friends, all of whom are midlife women. Not that cancer doesn't take young people as well, but I am suddenly aware of how vulnerable we all are to the ultimate breakdowns in the body. How vulnerable I am. And it makes me feel--well, very vulnerable.
I saw Sharon when I was in LA a couple of weeks ago. It was a reunion of sorts of our book club and Sharon, who hadn't been feeling at all well, particularly wanted to come. She needed to see her friends. The group of us hung out as we have done so many times in the past, and we talked, really talked, 'checking in' with each other as only women who have history together can do. My check-in was to relate not only the ghastly year I've had, but also the much more promising one that seems now to be taking place.
Sharon checked in with her medical report. The doctor saw a spot on her lung and said it was probably sarcoidosis. Or maybe lung cancer. Sharon wasn't buying that diagnosis; she much preferred the sarcoidosis, which is an immune system disease that is rarely fatal. She would do what she has always done (sometimes with disasterous results, it must be said) and trust totally in Alternative non-Western medicine. She was refusing the steroids that would be prescribed for the sarcoidosis and she was refusing the second CAT scan that would rule out cancer. But oh, she was so tired, and so weak, and so very very depressed. The doctor wanted her to go on anti-depressants and until now, she had refused them as well. But we, her girl friends (some of whom were loaded up on Prozac and Effexor themselves) urged her to reconsider. Think of the mind-body connection, Sharon, we told her. How can you hope to get well without your full emotional strength. And she finally agreed. When I hugged her goodbye, it was with the knowledge that she too would soon be loaded up on Effexor and feeling 100% in just a matter of time.
I don't think she ever got that prescription filled. The next day I'm told she was so weak that her sister came to take her to the doctor. She had the second CAT scan. Stage IV lung cancer; metastasized already to her bones. She died yesterday, just three weeks after I last saw her. When M called to tell me, I thought, Aha--the meh-ish feeling made much more sense than I had originally thought.
I've reached the age when I'm starting to lose my friends, all of whom are midlife women. Not that cancer doesn't take young people as well, but I am suddenly aware of how vulnerable we all are to the ultimate breakdowns in the body. How vulnerable I am. And it makes me feel--well, very vulnerable.
Wednesday, February 13, 2008
Today, Tomorrow, but never yesterday...
I don't really know what that means. It just came to me, and when things like that come, I write them down, and some time later, I say, Oh yeah, that's what that meant.
I had a hard day today. It didn't start out that way. For the first half of the day, I was charging through--gettin' stuff done, achieving, crossing items off the list. Then I went to this meeting I have every Wednesday. I went vowing to keep my mouth shut and my nose clean, and pretty much, I succeeded--but at what cost?
Why am I so bothered by other people's bullshit? Why can I not sit still when those around me are doing their paltry little ego dances? Why does this stuff not drive others nuts the way it does me? Why am I so intolerant? Why am I gritting my teeth--still, hours later?
I recall a dressing down I got from a boss a long time ago. He said, and I quote, "You walk around this office as if we owe you a living." And I was pretty proud of that, thought it acknowledged my obvious superiority which could not be hidden underneath that proverbial bushel. Now I think--man, how arrogant I was--and am. I really do have a sense of entitlement that is somewhat off-kilter. And if it drives other people crazy, you can't imagine what it's doing to me. I'm the one that lives inside this head, and somedays, I'll tell you, it just ain't fun.
Tonight I saw that Polly Williams died. You can read about it here: Polly Williams Of HBOs Thin Found Dead Did you see Thin, Lauren Greenfield's documentary on eating disorders? I've never had an eating disorder, so watching that doc was like visiting a foreign land to me. I sort of spoke the language--had a couple of nouns and verbs here and there--because after all, I am an American woman and I have spent my life not liking my body. But if I had a hard time understanding what motivated the other women to binge and purge and starve themselves to such drastic measures, I was completely undone by Polly Williams. She was just what I want to be: beautiful and outspoken and smart and not giving a damn and so very sure of herself and seemingly accepting of who she was. And yet--not. She died of an overdose, and intentional or not, she is gone. Jesus, I think, if someone like Polly Williams can't make it, what hope is there for the rest of us? And then I remember where I got to know her: on a TV program about eating disorders. Which are, as we know, a form of suicide. Which is, as we know, the response of a body in unbearable pain. Yet I envied her, eating disorder and all, I wanted to be her.
I can't come up with some grand summation here. Or maybe I could, but it would be trite, facile, bullshitty. Best to leave well enough alone, and say Goodnight, Polly, I will not soon forget you and I will someday make sense of what you're telling me.
I had a hard day today. It didn't start out that way. For the first half of the day, I was charging through--gettin' stuff done, achieving, crossing items off the list. Then I went to this meeting I have every Wednesday. I went vowing to keep my mouth shut and my nose clean, and pretty much, I succeeded--but at what cost?
Why am I so bothered by other people's bullshit? Why can I not sit still when those around me are doing their paltry little ego dances? Why does this stuff not drive others nuts the way it does me? Why am I so intolerant? Why am I gritting my teeth--still, hours later?
I recall a dressing down I got from a boss a long time ago. He said, and I quote, "You walk around this office as if we owe you a living." And I was pretty proud of that, thought it acknowledged my obvious superiority which could not be hidden underneath that proverbial bushel. Now I think--man, how arrogant I was--and am. I really do have a sense of entitlement that is somewhat off-kilter. And if it drives other people crazy, you can't imagine what it's doing to me. I'm the one that lives inside this head, and somedays, I'll tell you, it just ain't fun.
Tonight I saw that Polly Williams died. You can read about it here: Polly Williams Of HBOs Thin Found Dead Did you see Thin, Lauren Greenfield's documentary on eating disorders? I've never had an eating disorder, so watching that doc was like visiting a foreign land to me. I sort of spoke the language--had a couple of nouns and verbs here and there--because after all, I am an American woman and I have spent my life not liking my body. But if I had a hard time understanding what motivated the other women to binge and purge and starve themselves to such drastic measures, I was completely undone by Polly Williams. She was just what I want to be: beautiful and outspoken and smart and not giving a damn and so very sure of herself and seemingly accepting of who she was. And yet--not. She died of an overdose, and intentional or not, she is gone. Jesus, I think, if someone like Polly Williams can't make it, what hope is there for the rest of us? And then I remember where I got to know her: on a TV program about eating disorders. Which are, as we know, a form of suicide. Which is, as we know, the response of a body in unbearable pain. Yet I envied her, eating disorder and all, I wanted to be her.
I can't come up with some grand summation here. Or maybe I could, but it would be trite, facile, bullshitty. Best to leave well enough alone, and say Goodnight, Polly, I will not soon forget you and I will someday make sense of what you're telling me.
Wednesday, October 10, 2007
Thinking Pink and Thinking Green...
Here's a new why-I-haven't-blogged-recently excuse: the dog ate my homework...no, the dog ate my laptop...no, I can't decide which and what to write about so I just won't write anything. But this could go on for a very long time, so I'm grabbing the proverbial bull by the horns (as if) and writing Two Blog Posts In One....!
Post, The First: a disclaimer is required. I am very pro women, breasts, healthy women, healthy women with breasts and all that is required to keep them that way. I also, as you may recall, lost my best friend to breast cancer. Just saying that makes it sound like she went out in the cancer woods one day and never came home. Which isn't the case at all. She died, people, she died. Ten years after they cut off both her breasts. Okay, have I disclaimed enough to not infuriate all tender souls when I say:
Post, The First: a disclaimer is required. I am very pro women, breasts, healthy women, healthy women with breasts and all that is required to keep them that way. I also, as you may recall, lost my best friend to breast cancer. Just saying that makes it sound like she went out in the cancer woods one day and never came home. Which isn't the case at all. She died, people, she died. Ten years after they cut off both her breasts. Okay, have I disclaimed enough to not infuriate all tender souls when I say:
I hate this bullshitty Pink for Breast Cancer month.
It has become a huge marketing ploy. Every company out there has done a pink something or other, which is now being advertised as the Must Have and by-the-way, we are giving .001 percent of our profit on each item to breast cancer research. And the magazines have jumped on the bandwagon. Pages and pages of glossy pink this and pink that. If we can make it in pink, hey, do it and jam it on the suckers in October, which is National Breast Cancer month. Just in time for the lead up to orange and black for National Halloween Month. And green and brown and orange for National Thanksgiving Month. And the all-time favorite, red and green for National Christmas Month. With a soupcon of blue and white for Chanukah and red, green andyellow for Kwanza Months.
Part of my anger is that I hate pink. I hate that pink is supposed to be so girly. I hate that I'm supposed to want everything in pink. I hate that young girls in my family are brainwashed into loveloveloving pink. Even Kayla, whose favorite color has always been black, lives in a Pepto Bismal colored room. Pink is insipid. Pink is but a pale washed out form of red. I hate that when men want to humiliate other men, they put them in pink. Pink is--hey, did you know that in former times pink was the boy's color; it was considered, as a derivative of red, too 'Hot' a color for girls. But I digress...
I am all in favor of corporations major and minor giving large chunks of change to breast cancer research. And I can understand their desire to have people know and appreciate their good works. But wouldn't a simple line of print on the label do? I can't stand they they're making money not only from our pain, but from our good nature and need to fit in (see me! I'm wearing a pink whatever. I'm in favor of women keeping their breasts!)
Pink camo T-shirts? I ask you--what jungle war would they be worn in? Or should they be given to our female soldiers, just to kinda mark 'em in the field? And pink soup cans--I see all those rows of washed out Campbell's soup and all I can think is, "blech! how long have they been sitting in the barn?"
I have quite worn myself out with that rant. I shall save Post, the Second for tomorrow...you lucky people.
Part of my anger is that I hate pink. I hate that pink is supposed to be so girly. I hate that I'm supposed to want everything in pink. I hate that young girls in my family are brainwashed into loveloveloving pink. Even Kayla, whose favorite color has always been black, lives in a Pepto Bismal colored room. Pink is insipid. Pink is but a pale washed out form of red. I hate that when men want to humiliate other men, they put them in pink. Pink is--hey, did you know that in former times pink was the boy's color; it was considered, as a derivative of red, too 'Hot' a color for girls. But I digress...
I am all in favor of corporations major and minor giving large chunks of change to breast cancer research. And I can understand their desire to have people know and appreciate their good works. But wouldn't a simple line of print on the label do? I can't stand they they're making money not only from our pain, but from our good nature and need to fit in (see me! I'm wearing a pink whatever. I'm in favor of women keeping their breasts!)
Pink camo T-shirts? I ask you--what jungle war would they be worn in? Or should they be given to our female soldiers, just to kinda mark 'em in the field? And pink soup cans--I see all those rows of washed out Campbell's soup and all I can think is, "blech! how long have they been sitting in the barn?"
I have quite worn myself out with that rant. I shall save Post, the Second for tomorrow...you lucky people.
Wednesday, March 21, 2007
Where do you stand on the HPV vaccine issue?
In January, NPR's Rough Cuts ran a podcast on HPV and the vaccine. Back then, everyone had only good things to say about the topic. It was, it seemed, the Second Coming of vaccines, right up there with Salk and Sabin. But the whole ad campaign made me queasy. There have been too many "wonder drugs" touted in the past decade or so that have, with use, turned out to be less-than-wonderful if not outright dangerous. When I heard yet another pro-Gardisal program on NPR, I wrote this response, which was published on Rough Cuts web site.
Since I wrote that, Merck has pulled back on the advertising, but the controversy over the vaccine goes on. I certainly don't want to be put in the same pot as those who are against it for religious or moral reasons. But I still can't help feeling that the hoo-hah around the vaccine is--I don't know--a bit too loud. Is it that this is the first vaccine for cancer that's been found so let's shout it from the rooftops? Or that we're having some very sad, slow newsdays these past months?
I suppose the bottom line is: Would I vaccinate my daughter? I don't know. Okay, I don't have a daughter, so there aren't any stakes there. But I do have a pre-pubescent niece: am I going to lobby her parents to have her vaccinated? I don't know. Why am I having such a negative response to the vaccine issue? I don't know.
What do you think?
I'm confused/concerned/suspicious (?) that this flood of information about HPV and its relationship to cancer has come out with and is tied to Merck's campaign for their vaccine. It may be coincidence, circumstance or fortuitous, but I have been ignoring most of the "bumpf" on this topic as just another example of the drug companies' creativity and immorality with regard to marketing their products. The only reason I am paying attention this time is because I respect you, Michel [Martin], and NPR. Still, I would like to hear some medical testimony, pro and (especially) con, before I buy into what right now seems to be the latest scare tactic aimed at women's sexuality. Here are questions I would like to have answered:
1. Why has this taken so long to come to light -- given the incredible amount of energy that women have expended on behalf of their health issues?
2. What research (besides Merck's own) is being cited?
3. Who did that study which resulted in the shocking statistic (re: sexually active women and HPV)? What kind of a study was it? What were the numbers? What were the demographics of the study andhttp://beta.blogger.com/img/gl.quote.gif
insert blockquote the control group?
4. Is there anyone who is denying the veracity of this study and/or the need for the vaccine? Who are they? What are their claims?
5. Both of your guests are African-American, and you mention the prevalence among Black women. Is this coincidence? Or are Black women more vulnerable?
I could go on ... I've been a radio reporter, so I understand the vagaries of tape and time. But this story right now is too loosey-goosey for my liking.
Sent by Jane Gassner | 5:48 PM ET | 01-05-2007
Since I wrote that, Merck has pulled back on the advertising, but the controversy over the vaccine goes on. I certainly don't want to be put in the same pot as those who are against it for religious or moral reasons. But I still can't help feeling that the hoo-hah around the vaccine is--I don't know--a bit too loud. Is it that this is the first vaccine for cancer that's been found so let's shout it from the rooftops? Or that we're having some very sad, slow newsdays these past months?
I suppose the bottom line is: Would I vaccinate my daughter? I don't know. Okay, I don't have a daughter, so there aren't any stakes there. But I do have a pre-pubescent niece: am I going to lobby her parents to have her vaccinated? I don't know. Why am I having such a negative response to the vaccine issue? I don't know.
What do you think?
Thursday, March 08, 2007
Bronchitis...
That's what I have, according to the doctor I saw yesterday. She was wearing fake leopard-skin pants, so I'm not sure I should trust her.
Here are my symptoms: a chest full of shit, which rattles when disturbed; EEEXXTTTRRREEEMMMEEE fatigue. I told her, "I've haven't felt this exhausted since I had brain surgery" which caused her to whip around and finally direct her attention from the computer screen to MEEEEEEEEEEEEEEEEEEEE. Satisfied with my explanation--oh, a mere aneurysm--she went back to the computer and tap-tap-tapped in the prescriptions which went directly to the drug store, without even a by-your-leave or mother-may-I to me.
This is medicine by computer and those I bow to none in my love of geek gear, I think it sucks. It enables efficiency while disabling patient care. I feel a major rant about this coming on, but right now, I'm too TTTIIRREEDDD.
Here are my symptoms: a chest full of shit, which rattles when disturbed; EEEXXTTTRRREEEMMMEEE fatigue. I told her, "I've haven't felt this exhausted since I had brain surgery" which caused her to whip around and finally direct her attention from the computer screen to MEEEEEEEEEEEEEEEEEEEE. Satisfied with my explanation--oh, a mere aneurysm--she went back to the computer and tap-tap-tapped in the prescriptions which went directly to the drug store, without even a by-your-leave or mother-may-I to me.
This is medicine by computer and those I bow to none in my love of geek gear, I think it sucks. It enables efficiency while disabling patient care. I feel a major rant about this coming on, but right now, I'm too TTTIIRREEDDD.
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